What's in the news
Articles of interest for our military families:
“Delays For Autism Diagnosis And Treatment Grew Even Longer During The Pandemic” dated 30 March 2022 by Andy Miller and Jenny Gold from Kaiser Health News at https://www.disabilityscoop.com/2022/03/30/delays-for-autism-diagnosis-and-treatment-grew-even-longer-during-the-pandemic/29779
“Ed Department: Students With Disabilities Must Be Considered As Schools Go Mask Optional” dated 28 March 2022 by Michelle Diament from Disability Scoop at https://www.disabilityscoop.com/2022/03/28/ed-department-students-with-disabilities-must-be-considered-as-schools-go-mask-optional/29774
“Tax Breaks for Families With Special Needs” dated 6 January 2022 from Military OneSource at https://www.militaryonesource.mil/family-relationships/special-needs/adults-with-special-needs/tax-breaks-for-families-with-special-needs/?utm_campaign=ea-enews-winter2022&utm_content=html&utm_medium=email&utm_source=govdelivery
For more info on far more events for individuals with autism or similar disabilities in Northern Virginia, please join the ASNV email list serv at http://www.asnv.org or the POAC-nova email list serv at http://poac-nova.org/join-poac-nova. Both these email list servs are FREE!
“Life Journey through Autism: A Guide for Military Families”. See the Organization for Autism Research website at https://operationautism.org for a free guide includes information about services, resources, & support available to active-duty and retired military families.
Which state is the best?
We are often asked for a place to get a state-versus-state comparison for adults with a disability. The best location that we know of is the updated UCP website for 2020 at http://caseforinclusion.org. However, families should use this website in conjunction with other sources of research such as local Autism Societies, Arc Chapters, Centers for Independent Living, and a state’s developmental disabilities organization (like the Virginia DBHDS) where they can find information on the state’s waiver programs. Using several sources provides a better overall picture of states’ services. Also, services can differ significantly from locality to locality and county to county in some states. In addition, while some states provide better independent living services, they may be lacking in special education services and vice-versa. Good luck!
What do you do when your child turns 18?
We have been getting a lot of questions lately from military families about what to do when their child turns 18. In response, we have compiled the list at https://poac-nova.org/wp-content/uploads/2019/05/Going-Into-Legal-Adulthood.pdf for families in Virginia. Recently added were a couple of sample letters to DFAS. Many children of those on our board have turned 21, and they have lived and dealt with most of the issues and processes on the list. If we missed anything as you go through this trying time with your loved one with a disability, please contact Scott Campbell at firstname.lastname@example.org.
Special Needs Trusts Information
The DOD Policy letter, dated 31 Dec 15 on "Enabling Payment of Survivor Benefit Plan Annuities to a Special Needs Trust (SNT)" and a copy of the "Template for Special Needs Trust Certification" has been uploaded. You will need to get filled out by the attorney or agency who wrote the Special Needs Trust for your child. If you would like a copy of these documents, please send me an email at email@example.com. The Special Needs Trust Certification, a copy of the whole SNT, and a cover letter is mailed to Defense Finance and Accounting Service (DFAS), U.S. Military Retired Pay, 8899 E 56th Street, Indianapolis IN 46249-1200. The letter must list their relationship to the beneficiary (the child), state their decision to make direct payment to an existing SNT, and include the beneficiary's SSN. If you have questions about where to send it or anything else, call DFAS at 800 321-1080. More DFAS info on this option can be found at https://www.dfas.mil/retiredmilitary/provide/sbp/special-needs-trust.html. If you have questions about any of this, please call me 703 969-6730. Good luck!
Fort Belvoir, Virginia EFMP upcoming events and others in their area:
9 April- Sensory-friendly morning at the National Museum of the U.S. Army, 1775 Liberty Drive, Fort Belvoir, VA 22060 for visitors with Autism and Cognitive Disabilities on Saturday, April 9th from 7:30 to 9am. This program is for individuals to enjoy early access to the Museum with modifications to make the visit more sensory friendly. Anxiety coping devices (sensory maps and social narratives) will be available at the Welcome Desk. Service dogs are allowed during this program, as well as during normal operating hours. In case your GPS does not work to find this new museum, take the Exit 166 off of I-95 toward VA-286 South/Fairfax County Parkway. Continue for 2.5 miles and turn left onto Liberty Drive. This is a separate civilian entrance on to Fort Belvoir, so you will not be going on to the main Army post and will not need any ID or pass to get to the museum. Please register ahead of time to get your free tickets at https://tickets.thenmusa.org/Info.aspx?EventID=43.
24 April- ASNV “Autistic and Born to Perform” online Talent Show on Sunday, April 24th starting at 2pm. Sing, dance, act, draw, play, or juggle! All talents are welcome. If you do not have anyone or yourself who wants to share your talent, join us by watching and showing your support. The talent show last year was amazing. We had singers, performers, (all types of music & so many instruments) & we had a fire breather, barrel racer, water skier, artists & more. We had professionals who do this for a living, beginners who are just discovering their talents, and all in between! What is your passion? What is your talent? Feel free to share it with us. Submit your videos by Monday, April 11th at https://bit.ly/ASNVTALENTSHOW. Also, connect with ASNV at https://www.asnv.org, @AUTISMNOVA, and #AUTISMNOVA.
Exceptional Family Member Program Contact for more information is Marlo Keller at firstname.lastname@example.org or 571-231-7020.
Marine Corp Base, Quantico
Activities and workshops are open to all military connected families enrolled in EFMP or with children with special needs- active duty or retired all branches or service. You can register to attend any of the above listed events by emailing the Quantico EFMP mailbox at email@example.com or call by calling the Quantico EFMP office at 571-931-0524.
8-9 May- PEATC conference “MILCON 2022 from Alpha to Zulu”
Sunday, May 8th through Monday, May 9tg at the Virginia Crossings Hotel and Conference Center, 1000 Virginia Center Pkwy, Glen Allen, VA 23059. By PEATC in Partnership with VDOE. Join us for an in-person conference for service members and their families who have students with disabilities, and the professionals who serve them. Topics include special education, PCSing (Permanent Change of Station) with an IEP, transition services, and more. Please note - PEATC has a limited number of complimentary hotel rooms for individuals that live at least60 miles away from the conference location. The rooms are on a first-come, first-serve basis. You will be able to request a hotel room on your registration. There will be a Meet and Greet with an exhibitor's hall on Sunday, May 8, 2022 from 6-8 pm. This will give attendees an opportunity to network with each other, the presenters, and the keynote speaker. Attendees will also be able to gather important resources. Refreshments will be served. Keynote speaker is Patrick J. Bingham, Ph.D., Vice Chairman/Treasurer of the Military Child Education Coalition on May 9th from 9 to 9:45am. Dr. Bingham will kick off the conference with a presentation on education, the military family, and advocacy. Registration at https://bit.ly/3oGAwtO.
Naval Support Activity- Bethesda, Maryland & NSA-Washington EFMP area events:
For more info, contact Walkidia “Walky” Fradera, EFMP Case Liaison, Naval Support Activity Bethesda, Military and Family Support Center (Fleet and Family Support Center) at 202-656-4161 or firstname.lastname@example.org.
Fort George G. Meade, Maryland EFMP area events:
For more info, contact Meritta Dawson, Soldier and Family Assistance Program Manager, 4550 Parade Field Lane Room Ste 241 A at 301-677-7060 (Office), 443-683-0282 (Cell), Toll Free 877-220-2522, or at Meritta.email@example.com.
Joint Base Anacostia-Bolling, DC EFMP area events:
USAF Exceptional Family Member Program and Special Needs Identification & Assignment Coordination, daily Monday through Friday from 7:30am to 4:30pm at MFSC/JBAB Bldg. 13, 118 Brookley Ave, SW, Joint Base Anacostia-Bolling, Washington, DC 20032. Call this number for more information or to register at 202-767-0450. The EMFP and SNIAC are two separate yet related functions working together to enhance the quality of life for Air Force Families. The programs support and identify active-duty sponsors who have EFM’s with special educational or medical needs.
Joint Base Andrews, Maryland EFMP None at this time.
Langley Air Force Base, Virginia EFMP None at this time.
1. 'Hampton Roads (VA) EFMP Special Needs Families (Retired/Active) est. 2005' Facebook Group at https://www.facebook.com/groups/Hamptonroadsefmp
2. 'Virginia Military Special Needs Family Support' Facebook Group at https://www.facebook.com/groups/663908243652397
3. 'Military Special Needs Family Support (Worldwide)' Facebook Group at https://www.facebook.com/groups/361765527275172
4. 'USAF EFMP Family Support' Facebook group at https://www.facebook.com/groups/237346392971057
5. Disability Community of Hampton Roads - Virginia Facebook Page at https://m.facebook.com/hamptonroadsspecialneeds. Sharing events and information for all cities of Hampton Roads for all disabilities and all ages.
6. TACA Autism Virginia at https://www.facebook.com/tacavirginia
Virginia Autism Project's Facebook group page at https://www.facebook.com/virginiaautismproject
Partners in PROMISE at https://thepromiseact.org and https://www.facebook.com/PartnersinPROMISE. Partners in PROMISE (PIP) is a 501c3 nonprofit organization that serves as a representative voice for our Exceptional Military Family Members (EFMP). PIP was founded in January 2020 by four mothers to Protect the Rights Of Military children In Special Education (PROMISE). Focusing on a strategy of educating, advising and advocacy, Partners in PROMISE is the link between special needs families, established military service organizations, the Department of Defense, and legislators, working towards collaborative solutions to complex problems.
Past Month's Information:
"Consumer Review Site Takes on Adaptive Products,
8 February by Shaun Heasley from Disability Scoop at https://www.disabilityscoop.com/2022/02/08/consumer-review-site-takes-on-adaptive-products/29693
“Feds Warn Health Providers About Denying Care To Those With Disabilities”
7 February 2022 by Michelle Diament from Disability Scoop at https://www.disabilityscoop.com/2022/02/07/feds-warn-health-providers-about-denying-care-to-those-with-disabilities/29691
“Military kids face delays, inequities in getting special education services”
3 February 2022 by Karen Jowers from the Military Times at https://www.militarytimes.com/pay-benefits/2022/02/03/military-kids-face-delays-inequities-in-getting-special-education-services
“Intrusive, Irrelevant, Invasive, Inappropriate, and...”
3 February 2022 by Jeremy Hilton on LinkedIn at https://www.linkedin.com/pulse/intrusive-irrelevant-invasive-inappropriate-jeremy-hilton/?trackingId=GUOyeIEeSa6DLLtLrLSV0g%3D%3D or https://www.dropbox.com/s/9ise4ixs1i3eo2x/DoD%20Provision%20of%20ABA%20History%20FINAL.pdf?dl=0
“Tax Breaks for Families With Special Needs”
6 January 2022 from Military OneSource at https://www.militaryonesource.mil/family-relationships/special-needs/adults-with-special-needs/tax-breaks-for-families-with-special-needs/?utm_campaign=ea-enews-winter2022&utm_content=html&utm_medium=email&utm_source=govdelivery